Help the Helpers
Odin's Heart Foundation serves the families and caregivers of patients suffering from rare medical conditions by providing them with financial and community support. We know that among us, there are helpers who will rise and be there for us, no matter what it takes. Without them, the situation and outcome will be drastically different and extremely difficult. This kindness and selflessness for others can sometimes erode a helper's care for themselves, and they often feel isolated or without support and even unseen. Our mission ensures these quiet heroes who walk among us are supported and cared for.
Be like Odin
Odin's Heart Foundation was created in honor of the selflessness, kindness, and generosity of Odin Stone. Odin's brother, Rhys Stone was born with TRNF13B and KMD5B, 2 rare genetic disorders which created numerous challenges for the Stone Family. Odin, who was no stranger to struggle in his very young life, became a big brother, friend, and source of strength, inclusion, and love. Learn more about Odin's journey and help us ensure helpers are seen. #belikeOdin
Our Inspiration
Belding grandmother starts nonprofit for rare disease caregivers
By: Marisa Oberle Posted at 9:02 PM, Nov 24, 2022 and last updated 10:38 PM, Nov 24, 2022 BELDING, Mich. — Six-year-old Odin Stone does whatever it takes to support those around him. “He wants everyone to feel apart of,” Rachel Zipsie, his grandmother who lives in Belding, told FOX 17 Thursday. Zipsie says that caring spirit is…
Stone Family – Aleese and Rane Stone’s Story
