Belding grandmother starts nonprofit for rare disease caregivers

Odin's Heart Foundation

By: Marisa Oberle

Posted at 9:02 PM, Nov 24, 2022

and last updated 10:38 PM, Nov 24, 2022

BELDING, Mich. — Six-year-old Odin Stone does whatever it takes to support those around him.

“He wants everyone to feel apart of,” Rachel Zipsie, his grandmother who lives in Belding, told FOX 17 Thursday.

Zipsie says that caring spirit is especially true for his younger brother, Rhys.

“This morning, he heard Rhys in his room… he went in, unhooked him from his tube, unhooked him from his pulse ox machine, said, ‘Bring your stuffy,’ and ‘Let’s go wake up mom.’ And like, that’s what he does. If he sees somebody needs help and he knows that he’s capable of it, he’ll do it,” said Zipsie.

She explains in 2020, doctors diagnosed the three year old with a pair of genetic disorders that cause developmental delays.

“It’s so rare they tell us it’s on Reece’s time and everything’s on Reece’s time,” said Zipsie.

Read full article and watch the interview here

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