The Unsung Heroes of Rare Disease: Caregivers

In the realm of rare genetic diseases, caregivers often find themselves wearing numerous hats – from being parents and transforming into caregivers performing tasks nurses, or other medical professionals perform, working multiple jobs, forego their own care due to lack of time or resources needed. The journey can be incredibly demanding, emotionally charged, and physically…

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Belding grandmother starts nonprofit for rare disease caregivers

By: Marisa Oberle Posted at 9:02 PM, Nov 24, 2022 and last updated 10:38 PM, Nov 24, 2022 BELDING, Mich. — Six-year-old Odin Stone does whatever it takes to support those around him. “He wants everyone to feel apart of,” Rachel Zipsie, his grandmother who lives in Belding, told FOX 17 Thursday. Zipsie says that caring spirit is…

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Stone Family – Aleese and Rane Stone’s Story

Listen to the Story Sanctuary Podcast: Aleese’s Family When my husband Rane Stone and I got married in May 2014, we knew we wanted to start a family. I found out early on that I was unable to get pregnant, so we decided to adopt. Fostering had always been on my husband’s heart, and I…

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All Heart Award: Karelli

Congratulations Karelli! You are the first recipient of the All Heart Award. To hear more about Karelli and her family’s story check out their video:

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